Photo of smiling man with leaves in the background
SJD Candidate
Thesis title:
The Transparent Child
Office in Falconer Hall
84 Queen's Park
Toronto, M5S 2C5

My dissertation develops a legally justified informational privacy interest of children from their parents in the digital environment. Beyond youth privacy, I am interested in how technologies and law structure and mediate interpersonal relationships. I also research and publish on privacy and data protection issues in biomedical research, where I focus on international data transfers and European data protection law.

My doctoral work is supported by a Canada Graduate Scholarship from the Social Sciences and Humanities Research Council of Canada and by a fellowship at the Schwartz Reisman Institute for Technology and Society at the University of Toronto. I am also an affiliate of the Information Law Institute at New York University School of Law.

Certificate in Childhood Ethics - Views On Interdisciplinary Childhood Ethics (VOICE), McGill University
Master of Science in International Planning - University College London (UCL)
Bachelor of Civil Law & Juris Doctor - McGill University
Bachelor of Arts in Jurisprudence with Senior Status - St Edmund Hall, Oxford University
Bachelor of Arts in Urban Systems - McGill University
Selected Publications

Peer-reviewed articles

“Open Data governance at the Canadian Open Neuroscience Platform (CONP): From the Walled Garden to the Arboretum” in GigaScience (2024) with A Bernier, B M Knoppers, P Bermudez, et al.

“Whither Health Research: The Missed Opportunities of the Child’s Right to Health” in The International Journal of Children’s Rights (2023)with D Patrinos, R McDougall, and B M Knoppers.

“The Canadian Open Neuroscience Platform—An open science framework for the neuroscience community” in PLOS Computational Biology (2023) with R Harding, P Bermudez, A Bernier, et al.

Data and Tools Integration in the Canadian Open Neuroscience Platform” in Scientific Data (2023) with J-B Poline, S Das, T Glatard, et al.

“A Proposal for an International Code of Conduct for Data Sharing in Genomics” in Developing World Bioethics (2022) with A Matar, M Hansson, S Skolkenberga, et al.

“Bridging the European Data Sharing Divide in Genomic Science” in Journal of Medical Internet Research (2022) with F Molnár-Gábor, A Bernier, M P N Jimenez, et al.

“Streamlining Ethics Review for International Health Research” in Science (2022) with M A Rothstein, M H Zawati, A Thorogood, et al.

“International Coordination of Research Ethics Review: An Adequacy Model” in Philosophies (2021) with A Thorogood.

“Three Decades of Genetic Privacy: A Metaphoric Journey” in Human Molecular Genetics (2021) with B M Knoppers [invited review].

“GA4GH: International policies and standards for data sharing across genomic research and healthcare” in Cell Genomics (2021) with H L Rehm, A J H Page, L Smith, et al.

“A Marathon, Not a Sprint – Neuroimaging, Open Science and Ethics” in NeuroImage (2021) with B M Knoppers and J Illes [invited review].

“Coming Out to Play: Privacy, Data Protection, Children’s Health, and COVID-19 Research” in Frontiers in Genetics (2021) with B M Knoppers.

“Centering inclusivity in the design of online conferences—An OHBM–Open Science perspective” in GigaScience (2021) with E Levitis, C S D G van Praag, R Gauet al.

“Parental Access to Children’s Raw Genomic Data in Canada: Legal Rights and Professional Responsibility” in Frontiers in Genetics (2021) with A Thorogood, M J Szego, K Seńécal, et al.

“COVID-19 Research: Navigating the European General Data Protection Regulation” in Journal of Medical Internet Research (2020) with R Becker, A Thorogood, and J Ordish.

“Modeling Consent in the Time of COVID-19” in Journal of Law and the Biosciences (2020) with B M Knoppers, Y Joly, M H Zawati, et al.

"When Information Is the Treatment? Precision Medicine in Healthcare” in Healthcare Management (2020) with B M Knoppers [invited review].

Other articles

“Navigating the Ethical Maze of Genomics in Canada’s Military” in BMJ Military Health (2021) with B M Knoppers and C Boscarino.

“Basta con il biolaw: What about knowledge and trust?” in BioLaw Journal - Rivista di BioDiritto (2021) with B M Knoppers.

Book chapters

“Biomedical Research Policy: Back to the Future?” in Law and Legacy in Medical Jurisprudence: Essays in Honour of Graeme Laurie, edited by E Dove and N N Shuibhne (Cambridge University Press, 2022) with B M Knoppers and R Chadwick.

“Frontline Ethico-Legal Issues in Childhood Cancer Genetics Research” in The Hereditary Basis of Childhood Cancer, edited by D Malkin (Springer, 2021) with K Sénécal, C V Fernandez, D Sinnett, et al.


"Children's Data Protection" for the Human Cell Atlas (2022).

“Building the Human Cell Atlas: Issues with Tissues” for the Human Cell Atlas (2019) with E Kirby and B M Knoppers.

Policy interventions

"Submission to the Standing Committee on Industry and Technology Study of Bill C-27, The Digital Charter Implementation Act, 2022" (2022) with L R Shade. (Appeared at Committee on November 23, 2023.)

“Children’s Privacy and Video Games: Comments on Commercial Surveillance ANPR, R111004” (2022) with S Grimes, D Jayemanne, and S Giddings.

“RE: Public consultation regarding data protection and international transfers of personal data to non-EU countries” (2020) with the Global Alliance for Genomics and Health.

Opinion pieces

“The World Health Organization Needs to Craft and Adopt an International Pandemic Regulation” in The Hill Times (2022) with B M Knoppers and D Turp.

“Liberté universitaire: La loi ne peut remplacer le dialogue” in La Presse (2021).

“Pour un traité mondial sur la riposte aux pandémies” in Le Devoir (2021) with B M Knoppers and D Turp.

“Opinion: Canada’s Tax Return System Jeopardizes the Privacy of Millions of Canadians” in The Globe and Mail (2021).

“COVID-19: Who’s Afraid of Data Sharing” in Canadian Science Policy Centre (2020) with B M Knoppers.

“Qui a peur du partage des données?” in Le Devoir (2020) with B M Knoppers.

Research Interests
Comparative Law
Family Law
Feminist Analysis of Law
Health Law
Legal Theory
Privacy Law
Committee Members
Sara Grimes (Faculty of Information)